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Paula's avatar

Thanks so much for making these reading guides, I've been really enjoying delving into these themes so far!

I did feel a little bit conflicted about this chapter. I work with chronically ill patients (and am chronically ill myself), and especially in the anecdote about the AIDS patient I recognised a kind of tendency many of us have to force ourselves to think in silver linings when times are hard. This can also be enforced by our surroundings, when we don't have meaningful connections with people who allow us to mourn the negatives sometimes (that's what toxic positivity is, effectively). Perhaps in the case of a terminal illness, this is not so problematic, as you might as well enjoy the limited time you have left, but in the case of chronic illness I've often seen that this attitude can be used to push away justified feelings of grief, which then bubble up later, often much amplified compared to if they'd been allowed to exist earlier on.

Also in my work I often come across extremely ill patients, who are in constant pain. For them 'sitting with discomfort' is not an option as it is agony. For them, distraction or sedation from their symptoms to achieve a level of comfort they can live with is the best possible outcome that can be achieved. I know these are huge outliers compared to most of us, but I always find it important to bring this up, as people sometimes struggle to realise that not all hardship can be managed in the same way.

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